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A fundraising event held last month in Fayette County generated nearly $18,000 for neurofibromatosis research, and an anonymous donation matched that amount, making the total raised $35,781.42.
A check for that amount was donated to the Neurofibromatosis Center at Washington University School of Medicine. It will be used to fund research to learn more about the disease and to discover new methods of caring for people with NF. Neurofibromatosis is a genetic disorder of the nervous system.
The focus of the fundraiser is Jordan Walk, the 6-year-old daughter of Brian and Amanda Walk of Vandalia.
The fundraiser was conducted under the name of FuNFest. The tagline of the event was Join Our Rage Donate Against Neurofibromatosis – with the first letters of that theme spelling Jordan's name.
Included in the ad at right are a message from the Walks and a list of individuals and businesses who helped with the fundraising event or made contributions to the effort. For more information, call the Walks at 283-5386.